I’ve been following Dr. Dietrich Klinghardt now for a year or two. Dr. Klinghardt has one of the best records for recovering children from autism and other chronic conditions. In one of his presentations on YouTube, he shares that he tested all of the children with autism in his practice for Lyme disease. The result: 80% of autistic children tested positive for Lyme.
Eighty percent is an extremely high number given that Lyme is very difficult to detect in many people. This is because the tests are looking for antibodies to Lyme. People with a significant Lyme infection often have such a compromised immune system, that they are not producing enough antibodies for the Lyme test to detect. Given the high percent of people with autism who test positive for Lyme the first time, it may be that all people with autism have Lyme. Some children treated for Lyme see dramatic improvements.
Where would your child contract Lyme? One speculation is that children with autism have congenital Lyme — meaning they contracted it from their mother. This makes sense to me given that so many mothers of children with autism have chronic fatigue, and a major symptom of Lyme is severe fatigue.
The problem with the false negative tests so often found with Lyme is that people who are very ill do not get the treatment they need. So, even if you and your child test negative, you may still have it. You want a “Lyme literate doctor” who knows how to evaluate Lyme based on symptoms in addition to tests.
MOST physicians (even functional physicians) are not trained to treat Lyme. Here are options to help you find a “Lyme-literate” physician in your area:
- The International Lyme and Associated Diseases Society (ILADS)is a great way to get a Lyme-literate Doctor referral, and is probably the best place to start. Go to their website www.ilads.org , email them at firstname.lastname@example.org or call them at 301-263-1080 (they are on EST). ILADS is the “gatekeeper” for most Lyme docs in the United States. They may also be able to point you in the direction of an LLMD in another part of the world if you reside outside of the Unites States.
- Turn The Corner– an amazing Lyme disease foundation that supports the research, education, awareness, etc. of Lyme disease – will help you try to locate an LLMD near you for free: “Turn the Corner volunteers proudly answer inquiries from Lyme patients throughout the world and provide free, information about Lyme-Literate medical professionals in your area.” Here is the link: http://turnthecorner.org/content/selection-proper-physicians. And here is their email for inquiries (they will only answer by email): email@example.com
- Lymenet.org has a Lyme disease forum where they have a “Seeking a Physician” section. Here, members of the forum will give you the contact information for LLMDs in your area from www.lymenet.org. When you go to Lymenet.org’s homepage, click on “Flash Discussion,” and then click on “Seeking a Doctor.” You will be asked to enter your city, state, and contact information, and a Lymenet.org forum member will contact you with a physician referral.
- The Lyme Disease Association has a Doctor Referral Service: Go to www.lymediseaseassociation.org and click on “Doctor Referral.” You just need to give them your contact information and they will give you a doctor referral.
If you are already using a broad spectrum anti-microbial and getting good results, you may already be treating the Lyme which is a bacteria. There are treatments that do not require antibiotics.
I’m off to Autism One on Thursday. I’ll be back with news and information.